MY MUST DO LIST...

When you have to undergo emergency brain surgery at the tender age of 30, friends and neighbors share surprising things about themselves; health secrets that are hidden from anybody outside immediate family are suddenly revealed. I felt privileged to be allowed into this area of their lives. Now, we are members of a club where we stared death in the eye and/or beat the odds to come out cleaner on the other side. The surgeries we had and the maladies we suffer are not important. What I found interesting, although not surprising, is, now, we have lists. Many call their list a bucket list, made extra popular by the Morgan Freeman, Jack Nicholson film of the same name. As much as I love and respect those two actors, I refuse to call my list a Bucket List. I am not dying any more than the next person. I have friends that call their list a “Leap List.” That does not ring true to my core either because I don’t feel like I’m taking a leap of faith to do anything on the list. I simply want TO DO. And for me, that is simply the most true name. It is “Life’s To Do List.” I always had a list running in the back of my mind like an unobtrusive program on your computer (or breathing). You don’t think about it. It’s simply there. But, shortly after my surgery, I set forth to create a list, and do it well. I researched the types of life lists people do and what they put on them. These items jogged my memory of what I wanted to do and then sparked my inner desires, and I elaborated. Soon, I had a spreadsheet. The list has been taking shape over the last year and a half.  My “to do” now has a date next to the left when the idea was conceived & a date to the right when I complete the activity or adventure.

One thing on my To DO List is to be a better dancer. I had several styles of dance on the list. When one of the Daily Deals on Living Social was ONE MONTH OF UNLIMITED DANCE CLASSES AT NADIA’S RHYTHM ROOM I jumped on it. I purchased my deal & this month, I was finally able to cash it in.

Let’s remember, I have limited rhythm. The limited rhythm I do have is thanks in part to an ex-boyfriend who was Guatemalan and a gay college friend who taught me foundational moves of club dancing. Fast forward to December 2010- I must have surgery to remove a cerebella tumor.  Since the cerebellum is the root of movement and balance, having it disturbed from tumor and surgery presented balance and coordination challenges.

I wanted to sink my teeth in and go all out, but after over-indulging in Victoria, I quickly decided if I danced every day, I might have a small breakdown, so I decided to keep it “easy.” My first day in class was the Cha-Cha. Here too, I saw a challenge I didn’t anticipate… double vision while dancing. Not knowing what to expect, I was glad I brought my prism glasses. While most take glasses off for physical activity, I ran to my bag and put on my glasses to prevent excessive double vision. I knew this next month would present a unique challenge, but I wasn’t going to back down.

Two Weeks Travel

Totem Poles @ Stanley Park,
Vancouver, BC, Canada

I have returned from a whirlwind trip to CT, Seattle, & British Columbia. I’m not quite settling into normal… The normal I have had is not the normal I am pushing myself to shift into. I still desire to get back to running several times a week. I need to remind myself of what Sherry Lansing said during my college commencement, “you can have it all; you just can’t have it all at once.” I am certain that she was not figuring brain surgery or any kind of health set back. Set backs and bumps in the road are expected. It could be seeing Jeff, or it could be the talk of commencement speeches, but it makes me recall high school. The valedictorian was a mutual friend of Jeff & me. In her speech she told us we would have bumps in the road. She spoke of the pet goat who was neutered & on the same day of his operation, was hit by the lawnmower & his horn was cut short. Despite the goat withstanding these traumas all in an afternoon, he lived a very full & vibrant life. She encouraged us to do the same.

2-hour sunset kayak tour

I doubt the goat was concerned about shifting his paradigm to something more similar to the life he had before surgery. I know I am not the same person I was when I had surgery. Priorities have shifted- most for the better. While not fully enjoying the demand for sleep, I am making it more of a priority. Needing to stay active is also a  priority. This need is not driven fear to be fit for the next surgery. It is driven by joy & the pure ability that I can do it. I like being able to run 10 miles & I LOVE the new coordination I have because I don’t have the tumor pressing on my cerebellum.

While traveling in the Pacific Northwest, I was outside every day & walked everywhere… likely 3-5 miles a day. I never quite grasped the metric system until I took up running & because of it, I could assimilate & speak in kilometers when talking distance. The bike ride around Stanley Park was 10k (6.2 miles) & the round trip distance from my hostel to the breakwater in Victoria was roughly 5k. I probably kayaked 3k in Victoria harbor (with Kelp Reef Adventures) and my Vancouver walking tour (including a trip to Lynn Canyon) is an estimated 6k. The hike with Jeff through a path in the Cascades just outside of Seattle was 7.2 miles. I was never at a shortage of activities & even though I gained 1 lb, my clothes fit better. (I’m hoping that 1 pound is muscle, not pastry/ice cream/coffee.)

Lynn Canyon Suspension 
Bridge. Next time, Capilano
Suspension Bridge

I'm back home and it's time to get back to reality. Instead of 8-10+ hours of activity, I am 8-10+ hours behind a desk and wheel of the car.  I need to shift again and carve out time to exercise. Also, as Jeanette at Soloma Fitness has been reminding me, I need to build in activities throughout my workday, particularly because I have a stationary job. Small stretches, leg lifts, etc, will keep me in better health. Jeanette is also the reason I keep a carafe of water on my desk to drink through the day.

With the strength I have built from vacation travel and a focus on "some distance is better than no distance," consistent long distance will become normal again. (The dance classes I start next month should also add a fun cardiovascular activity while helping cross another thing on my to-do list.) 

From The Road....

Summer is here and that means Summer Olympics, but more importantly summer hiatus. Hiatus is that time when our production office closes for a much-needed break. In the past this has meant flying to visit family, usually coupled with ample downtime in Los Angles. By downtime, I mean cleaning & organizing mixed with time with friends.  This year has been very similar, only with a slight variation… my niece was baptized (so now I’m a godmother) and I’m traveling! Once emerging from the woods after surgery & not too far after my first post-surgical half marathon, I made a TO DO LIST. I do not accept the term “bucket list,” and have actually renounced this label. A “To Do List” is so much perkier and far more accurate, especially because I am not dying any more than the next.

After spending a few short days in Connecticut, it was off to the Pacific Northwest. What originally was going to be a quick 8 day trip quickly blossomed into a full fledge adventure. The more people I spoke to, the more I was encouraged to maximize my hiatus. I spent the first 2.5 days in Seattle visiting a friend I’ve had since I was 11. I stayed with him (Jeff) and his fiancé- we walked nearly everywhere. I thought Los Angeles was fit, but those in Seattle have us beat.  Seattle has hills that rival San Francisco, & I’m told the winters are milder and a good hike is a short car drive away.

Jeff has always been a tremendous supporter of mine. Despite me being shy through all of junior high and high school, Jeff was there. Had I been brave, I would have opened up, but even opening up to friends was difficult. When I was in the hospital, Jeff was one of the first friends to reach out, show support and give me rounds of the encouragement I needed to heal.  I am so happy that even though we live in different states we have become closer, and I am no longer afraid to discuss things that friends discuss.

Lake Serene in the Cascade Mountains

When Jeff has had to travel to Los Angeles for business, he has made a point of reaching out to me & making sure we connect. I have been looking forward to being able to see him in his neighborhood. Jeff and I were on track together- and I knew that he had become an avid hiker.  I only knew about the Olympics in Washington, mainly because of the National Parks series that Ken Burns did. When I suggested a hike in the Olympics, Jeff countered with a hike in the Cascades, where we can spend more time on the trail and less time in the car.  After sleeping in and a breakfast of pastry from Bakery Nouveau, we set off for the tail head. The air was crisp and as is customary with Seattle in August, it was clear. We hiked 3.5 miles in past moss-covered trees that looked like something out of "The Dark Crystal," past a waterfall where Jeff startled a hiker so much, she screamed for a solid 2-seconds, and up numerous flights of stairs. One would think the stairs would be no big deal, but after trying to maintain balance on slick rocks crossing rivulets and having moderate double vision  (more from the amount of visual information I was trying to process and less from fatigue) while trying to keep your footing quads and glutes were aching.  Jeff, who stands nearly a foot taller than me and has more hiking experience, did not lead us at any break neck pace, & made sure we had time for water and rest our knees. Still, I thought we hustled, but it took us nearly 3 hours to reach our destination of Lake Sere. And, serene it was. We dined on turkey sandwiches on fresh baguettes, taking in the beauty of the lake and the surroundings.

Like most endurance activities with friends, it always is a time to be introspective and share things you may not necessarily share in daily life. It was comforting to talk with Jeff about the successes I’ve had and share some setbacks I’ve experienced. As Jeff has always done, he gave the encouragement and reassurance, all in the right doses… reminding me that what I’m doing to stay in shape & stay positive. Staying positive is sometimes easier said then done with the incredible residual shrinking and growing brain tumor, but getting out in nature with friends and getting the blood pumping on a run or hike is a great way to bring my mind back to being thankful and living life to the utmost fullest.

Unexpected Progress

It feels like all I’ve been doing is go to work, come home, have dinner & go to bed. It’s not a rut per se, but it has been an ugly cycle.  I have desperately been trying to shift my paradigm back to the more active always-productive Sarah.  Try as I might, I on a plateau with a massive vertical wall in front of me. I’ve searched for a finger & foot-holds. I found some, but when I would climb, but no matter how much progress I made, I lose my grip & slide back down.  People constantly grow & build on skills. When we are tested, it may feel like we’ve experienced a setback, but we’ve actually made progresses because we are a stronger individual than we were prior to gaining the new skills.

Looking back on the enormous energy I expended after surgery to do simple things like get out bed & sit in a chair or shower by myself, the me of today is proud of the me from 18 months ago. But, today, I would not be satisfied with such a mundane existence. I now look for other ways to push myself. Despite these humbling benchmarks, in the day-to-day & week-to-week of living, seeing progress is difficult.

Last week I took advantage of my office closure & had a follow-up appointment with my neurologist on Monday. She administered the standard neurological tests. We started with fine motor, then it was on to gross motor. I walked a straight line, then walked heal to toe. She followed up this malicious examination by having me walk on my tippy toes & then lean my weight on my heals & walk like that. She proclaimed since my last appointment I improved remarkably. I thought she was being kind & even joked when I wobbled on one of the tests that walking a straight line has always been tough & my friends tell me I can’t pass a sobriety test sober. She qualified her remark by noting I had better over-all balance & body control while having a more steady gate. Still thinking she was full of shit, I thanked her graciously had some girl talk about weight loss & then confirmed I my 6-month follow-up.

 

On Thursday, still thinking she was full of shit, I went for a bike ride. Despite having tires that were a little soft, I noted how much easier cycling was since the last time I road, (which is pushing 3 months ago). I rode to the Chandler Bike Path from my apartment & then the entire path.  (This is a round trip of 10 miles.) Like I did on my first long bike ride, I passed Buena Vista & gave a wave to Providence St. Joseph Medical Center & my caregivers there. I road to the end & & enjoyed the accomplishment as I drank my water.

On my return, I was tired & unsure if I could make it back. I figured more air was in order. I found a NAPA store with a mechanic. He did not accept my offer to purchase air; he just gave it to me. He even got fancy & took out his tire pressure gauge.  I thanked him profusely & road away. Filled with air for my tires & confidence in my heart for my accomplishments, I knew I could make it home. I’m still not setting the world on fire, but my Garmin Forerunner GPS tells me my speed has increased, & I know additional speed will come. 

Non-Linear Recovery. So Be It.

Paramount's Famous Bronson Gate

I don’t know why it always comes as a surprise when I move in a linear progression with recovery then something happens and I am quickly reminded that recovery is NON-LINEAR. When I was younger and wanting to get into “The Biz,” I gorged on books and read countless examples of how one can achieve the position they want, and sometimes the position they have wasn’t what they expected. Sherry Lansing, former CEO of Paramount Pictures was an actress and even played opposite of such legends as John Wayne. She climbed her way to the top in what one may say an unconventional fashion. I loved her when I was younger, and I still respect and admire how she has paved the way for women in entertainment and what she does philanthropically. She is one of many who sidestepped their way to the top.

When I moved to Los Angeles, I interned on a one-hour drama… some of the writers took traditional routes of PA to writer’s assist to writer, then there was the writing team who started off writing video games and then turned one of those games into an animated series, and then they eventually were writing for TV shows.

Non-linear advancement is germane to the entertainment industry. Many will give you an anecdote of how to “make it” in the Entertainment Industry. Yes, there are non-linear paths in other professions, professions where one can get from point A to H, but maybe jump to I first and then eventually exit after Z. This non-linear has been my Modus operandi thus far.  If that’s the case, it’s only logical I would be drawn to an industry that has a non-traditional method of grading and advancement. If my life path and career path have been non-linear, why should my recovery be any different? In fact, I should take comfort that my recovery has been non-linear since it’s me.

This summer I am approaching my 10-year anniversary of living in Los Angeles.  During that time I’ve hocked swag (1 day) in front of a local grocery store (ironically down the road from Paramount); worked in retail; and done the traditional Hollywood entry-level position twice over, meaning I was a page AND I worked in the mailroom. From the mailroom I worked as an Admin Assist/Coordinator in the syndicated TV sales office.

Now, nearly 10 years after moving to Los Angeles, I am reminded that I have worked on two projects that were nominated for Emmys- the first being an LA Regional Emmy nomination for a PSA I co-wrote and now as an Associate Producer for Judge Joe Brown. We celebrated our hard work and nomination at the Beverly Hilton during the 39^th Annual Daytime Emmy Awards this past weekend.  Everyone on the staff has a different story of how they got here. Amazingly, even though he is the host of the second highest rated court show, this is the first nomination for Judge Brown.  During our

Fancy makeup-non-
running clothes-me.

celebration, he reminded us of the victories that we have achieved during the 14 years the show has been on the air. I am blessed to work on a great show and have co-workers I can call friends. Our hard-working staff and all the other TV productions reminds me of a conversation I had with our Senior Supervising Producer (whom I was assisting at the time). When I was chomping at the bit to come back to work after surgery, my boss reminded me: “This is television production. It’s a marathon, not a sprint. We’ll be here when you get back.” It’s true. They were there then, and they are here now. They are always looking out for me as we look out for each other going through medical crises. Judge Brown has been on the air for 14 years and last night we celebrated his first nomination.  There will be a win for him soon. Just because there isn’t a statuette on his mantle this week, it shouldn’t take away from everything he’s achieved and the example he’s set. I need to take the Daytime Emmys as an example. I must stop looking at what I’m not doing with the running and start looking at everything I can do…. And am doing.